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The Diving Bell and the Butterfly (Vintage International)
Jean-Dominique Bauby

Vintage, 2007 - 144 pages

average customer review:based on 165 reviews
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   highly recommended  highly recommended



Rarely does a movie improve the book, but in this case it does!

I saw the movie before I read the book. Perhaps that was a mistake, but I loved the movie so much that after seeing it three times, I wanted more. So I read the book and wish I hadn't. Julian Schnabel's version of this story is filled with agony but also with light and beauty. The actors are so accomplished and moving (particularly Max von Sidow) that the story becomes human and uplifting, in spite of its tragic ending, and like all great art it affirms the worthwhileness of life, even in its diminished but heroic manifestation. In the book, Bauby--understandably--writes in a self-centered and superficial way. I feel guilty even saying it, because, of course, he was in an unimaginably difficult situation. But Schnabel had a deeper and more insightful vision. Schnabel portrays a man who indeed was selfish and vain at the beginning of his hellish journey, but who is able to turn to imagination and writing as a way of transcending the pettiness, wildness, and meaningless of his former life.
This change is indicated in several ways. First, when he learns to communicate, Bauby tells his speech therapist that he wants to die. (This does not appear in the book.) She is very upset and reproaches him for his despair. Then she comes back to apologize for stepping out of line. This human interaction of caring and anguish affects the protagonist who decides a short time later to stop feeling sorry for himself and, instead, to use his imagination and memory in order to write down his thoughts and thus defy, in the only way available to him, his diving bell. This decision, probably thought out by the director or the actor (because it is not mentioned in the book) also leads him to reflections of remorse for the way he had been treating his wife and a wish, clearly articulated, to make amends. There is no remorse in the book; instead, Bauby remembers a horrendous fight with his wife, which does not flatter either of them, and conveys little insight into the nature of his toxic relationship with her. His hostility toward her, in the book, is still simmering, even in his paralysis. A Greek philosopher said that suffering leads to wisdom. And that's what great art gives us as a gift nonpareil. I didn't see wisdom in the book, but I did see it in the movie.
Furthermore, the book skips his meetings with his wife and his girlfriend, meetings which the movie presents in rich and poignant abandon. In the book, Bauby's relationship with his father is summarized, in a paragraph, rather than experienced. In the movie the acting of both von Sidow (as the father) and the actor who plays Bauby is magnificent. The relationship between father and son becomes a profound and moving experience. Schnabel, no doubt, turned a mediocre book into a great work of art. And if he gave the real Bauby a depth he didn't, in reality, have--so be it.


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Haunting. Beautiful. SCARY

Wow. To say that this book makes an impact is to state the obvious. Jean existed in what I would call a "living hell" -- alert and cognizant though paralyzed and trapped -- "locked in" his mind without the ability to communicate his thoughts, feelings, needs, or condition to anyone. He suffered a stroke at a very young age and was left completely paralyzed with only the capability of sight, thought and the ability to blink his left eye. I felt his frustration, his every breath, his longing to move his finger even a fraction of an inch, his pain at his inability to express himself. Thank heavens for the ESA alphabet and the breakthrough that allowed him to communicate. He dictated this memoir by blinking to Claude as she reached each letter of each word in each sentence in this book.

A testimony to the human spirit. It's not really sad, it's uplifting to think that this incredible man overcame his imprisonment in his mind to tell us all that he was still "there" through it all.

I hope it makes just one person compassionate and caring. I wish that everyone, somehow, learns about this condition and will use this knowledge if faced with or dealing with someone who has it.

To say it's inspirational would be to give some meaning to Jean's suffering. There is no meaning. It was a horrible way to live the last year of your life.

But this story and Jean Do will linger in my mind for a very long time.


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A Novel Menagerie's Perspective on The Diving Bell & The Butterfly

After reading Lisa's Best of 2008 List and after speaking to a fellow "Basketball Mom" last week, I was intrigued to read The Diving Bell and The Butterfly. The story is a sort of an auto-biographical one, however only sharing Bauby's remarkably beautiful memories of the life he lost after the massive stroke he suffered in December 1995. At the time, Bauby was 43 years old and the editor of French Elle Magazine. From what I gather in this book, his life was once filled with travel and he was the type of man with an incredible passion for life. Once stripped of his physical abilities and the ability to effectively function and communicate due to "locked-in syndrome," a permanent and full paralysis as a result of the stroke, his mind craves to communicate the very acute and real memories to his bedside assistant.


Bauby is able to communicate via the blinking of his one functioning eye. He describes in the book that he had written and edited the material multiple times in his mind so that the effort to communicate it was clear the first time around. In his memoirs and thoughts, he shares his vivid memories of his travels in his past and times with his family and friends. He further describes what it is like to be trapped in this non-functioning body and compares it to being weighted by a diving bell/suit. He shares what all his sensory functions are like: eyesight, hearing, dreams, smell, and pain.


This book was, to me, more of a book of prose than of typical writing. Each line of the book intricately designed to effectively provide the reader a vision and an understanding.


In describing how it felt to now be described as a vegetable:


"The tone of voice left no doubt that henceforth I belong on a vegetable stall and not to the human race. France was at peace; one couldn't shoot the bearers of bad news. Instead I would have to rely on myself if I wanted to prove that my IQ was still higher than a turnip's."


And, he describes the hospital cafeteria:


"Although my own corner of the hospital has the look of an expensive private school, one would never mistake the cafeteria crowd for member of the Dead Poets Society. The girls have hard eyes, the boys tattoos and some with rings on their fingers. There they sit, chain-smoking and talking about fistfights and motorbikes. Their already stooped shoulders seem to bear a heavy cross. Cruel fate has cured them, and their stay at Berck is just one more stage between an abused childhood and jobless future. When I am wheeled through their smoke-filled lair, the silence becomes deafening; I see neither pity nor compassion in their eyes."


Some of my favorite parts of the book include his visit to the beach, his viewing of his children playing, and his description of what food tastes like although he is only being fed by a tube. This is a remarkable book in the knowing of how it was written and the determination it took Bauby to ensure its completion.


On Sher's "Out of Ten Scale:"


There is no clear book to use as a comparison to this one as it is unique in every way. This is a book that reminds you of the sheer preciousness of life and the value of human health. For the genre Non-Fiction, I would give this book a 9 out of 10. My thanks go out to Lisa for lending me the book.




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Grants you access into a lonely, locked-in world; this poignant memoir is a stark reminder of how precious life is. BCM

The Diving-Bell and the Butterfly is such an insightful and inspirational book. This is one mans story; his triumph of spirit and his courage despite all odds. That a man in his prime, powerful and respected, could be brought so low by a rare condition known as locked-in syndrome; it is almost to horrible to contemplate. This story is a quick read and has a distinct, flowing plot. I was really fascinated by Jean's indomitable spirit and his sardonic wit. There were many times when I smiled at Jean's comments and thoughts, delighting in his zest for life while in a near vegetative state. The beautiful writing was so vivid and detailed that I could almost see through his one, good eye. His absolute determination, to share his story with the world leaves us forever in his debt. Though I was saddened by his condition and ultimately his death, I really enjoyed his story.
I highly recommend this book.

(9 out of 10 Diamonds) - Loved it!


© 2008-2009 Bobbie Crawford-McCoy (Book Reviews By Bobbie).
All rights reserved.




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the diving bell and butterfly

THank you! Fast shipping, exactly as promised. SUch an amazing book--you should see the movie as well.


reviews: page 1, 2, 3, 4, 5, 6, 7, 8, 9, 10



In December 1995, Jean-Dominique Bauby, the 43-year-old editor of French Elle, suffered a massive stroke that left him permanently paralyzed, a victim of ?locked in syndrome.? Once known for his gregariousness and wit, Bauby now finds himself imprisoned in an inert body, able to communicate only by blinking his left eye. The miracle is that in doing so he was able to compose this stunningly eloquent memoir.

In a voice that is by turns wistful and mischievous, angry and sardonic, Bauby gives us a celebration of the liberating power of consciousness: what it is like to spend a day with his children, to imagine lying in bed beside his wife, to conjure up the flavor of delectable meals even as he is fed through at tube. Most of all, this triumphant book lets us witness an indomitable spirit and share in the pure joy of its own survival.


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