First class in a mostly invisible and sometimes "Lost" class

books:


	• Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness, Second Edition Paul J. Donoghue, Mary Elizabeth Siegel W. W. Norton & Company, 2000 - 304 pages average customer review:based on 22 reviews view larger image
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highly recommended

Sound Advice

This book is an excellent combination of concrete examples and reflective thought about what it means to be constantly ill. Filled with specific stories of individuals and their struggles, it also has a section on more constructive steps one can take to interact more fruitfully with ones friends, family and society in general. It does a good job of helping one to be feel understood without allowing self pity to be the dominant emotion.

Start their New Year with this book

A friend recommended this book to me when I got sick, and I'm so grateful he did. I've been sick for two years, but I know I'm not alone or crazy.

Now one of my family members has finally agreed to read this book. I plan to start her New Year with it.

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Comforted and Informed Instead of Sick and Tired

Dr. Donaghue and Dr. Siegel have given us a gem of a book! By drawing on their own personal experiences as well as the experiences of their patients, they have presented a through and comforting introduction to living with chronic illness.

After months of living with my own invisible illness, I finally read this book and by chapter 2 I could not put it down. I have dog-eared and highlighted, circled and starred. I have made sure my parents and friends have read sections. It is like glimpsing into my own mind. They anticipated and answered all of my worries, frustrations, annoyances, and fears. They offered practical, sympathetic advice on how to deal with the difficulty of living with an invisible illness.

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Excellent resource!

As someone who suffers with more than one ICI, I found this book to be both a comfort and a help. While some of the medical descriptions are slightly out of date, the confirmation and understanding of the emotions that are an integral part of the ICI experience are right on target. While the chapters about treatment and therapy are not as detailed as I would have liked, they did offer a good starting place for me to talk with my doctor about practical steps I could take to improve my quality of living. A couple chapters reminded me of "Psychology 101," but the majority of the material was worth the read.

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First class in a mostly invisible and sometimes "Lost" class

This is one of a handful of books that give insight and help to a problem that is killing people, if not eating them up alive.
The handbooks that are available for this topic are few, but those that are there are brilliant.
The exposition and the methods made available by this book is truly a life saver. In many respects though, we still have a long way to go. Progress will not be made unless the surgeons who treat the sufferers of this disorder/disease are made to understand what is happening. It is a very real issue, and there are some rehab staff who see it all too often, but the high paid Doctors do not acknowledge this issue.
An excellent accompanying book for this one is CRY OF THE DAMAGED MAN... and it is a traumatic book, but it shows how one surgeon came to realise what his patients were going through.
I have had people I know and care for treated look psychos by the establishment Doctors.
One of the worst places to have this range of problems is in Australia, particularly Victoria, Australia, and Tasmania , Australia.
A relative of mine in Tasmania had a horrible accident that left him with life long pain, which the Doctors and his immediate family all said were psychological. He suffered for a lifetime, and eventually killed himself to stop the pain. A couple of family members knew what he was going through and believed him. They helped him immensely, but the Doctors he was treated by were educated during the period of B F Skinner, and such a horrible legacy that man Left that it warped several generations. Including the perpetrator of some vicious books, Ainslie Mears... a Doctor very affected by B F Skinner.
In Victoria, the TAC sentences people with the problems described in this book to a lifetime of pain. The Victoria, Australia government body is all about money; there is no humanity in it. In one case a friend came to the United States for diagnosis and a treatment regime, and upon returning to the Vicious Victoria, the Doctors were livid with rage that she had gone to a place that understood her problem; she had dared to question their "God" like authority.

For those of you reading this who do not have the problems covered by the rubric of Chronic Pain, or the so called Invisible Chronic Pain, you need to learn; some people you know may be going through this, and whilst you cannot truly understand the pain, the words to say that mean the most are, I'll be there for you.
Gradually these pain problems are being truly documented thanks to major advances in technology. The Doctors who have denied the existence of this problem have a lot to answer for, and in some cases have blood on their hands.

This is truly a breakthrough book.
There are ways and means available now that can help manage these pain problems. Eventually there will be treatments. If you know someone who is going through the problems discussed in this book, a gift of this book may very well be a life saver.

This book made a difference for me, as has the various other books in this area; also, Emmett Millers work has been of vital importance.

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reviews: page 1, 2, 3, 4, 5

Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others. Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time. For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.

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