It becomes a journey that you embark upon with your child. In the beginning, you will learn the true depths of your emotions; in the middle, when you think that your reserve of strength has been depleted, you will learn that you can draw strength from your child; as the journey continues, no matter the amount of your child's limitations, you will learn that your child is the teacher and that you are the student. The lessons are sometimes subtle but are always profound.
When the tragedy could have been prevented, it adds a whole other dimension to the trip.